Improved independence with support coordination

Dianne’s life shifted dramatically the day she woke up paralysed below the waist and could not hear.

Dianne has a rare condition called Neurosarcoidosis, a chronic disease of the central nervous system, which encompasses the brain, spinal cord and optic nerve.

A visit to the hospital to determine what was happening turned into an 80 day stay resulting in health staff talking about the NDIS and disability services.

“I didn’t know what they were talking about or anything about the process or even realise what carers do,” Dianne said. “I honestly thought, am I really that bad? I thought after 80 days I should be strutting out of here!”

Dianne was connected to Multicap’s Support Coordination team to help navigate the NDIS and access the disability support providers.

“They have been so helpful, giving me options and helping me understand,” Dianne said.

Dianne’s journey has been even more challenging since moving home, as modifications were urgently needed to allow her to access a bathroom within her own home.

After waiting for 18 months, using a bucket to bathe, and regularly staying in a nearby motel to access a shower, Dianne was contemplating self-funding her home modifications.   

Support Coordinator, Virginia commenced working with a trusted draftsman who requoted the renovations, requested a Plan review, worked with Dianne and her Occupational Therapist on detailed goals and demonstrated that Supported Independent Living would not be value for money. 

The revised Plan, along with the new builder’s plans and quote, was resubmitted to the NDIA, and was eventually approved. Dianne has now renewed hope for independence in her own home.

“I’m so grateful. Virginia means what she says – she just gets it done. It’s something I don’t have to worry about now. She has taken care of the heavy stuff and taken so much pressure away,” Dianne said.

“It takes special people to do what you do.”

When the renovations are complete, Dianne is looking forward to growing some vegetables and flowers in the garden and get a puppy.

Virginia is also assisting with Dianne’s goal to have improved hearing by accessing a better hearing device so that she can play piano and hear her kids again.

Our team of experienced Support Coordinators identify and negotiate with quality service providers, connecting our clients with the support they need to live their best life in the community.


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